Rare disease is a reality for every fourth patient who walks into a doctor's office. We can connect you to rare patient support groups and Illinois rare families. Thank you for
connecting rare patients to rare disease support groups
enrolling rare patients in rare disease research studies
diligent case documentations in rare disease records
In addition rare patients rely on you for
accommodation letters
accessible transportation and medical transports
help with affording drugs, therapies, and durable medical equipment
UDN - Undiagnosed Disease Network: Submit a case
GARD - Genetic and Rare Diseases Information Center and Helpline
OMIM - Catalog of Human Genes and Genetic Disorders
Orphanet.org - Knowledge on Rare Diseases and Orphan Drugs
Sophia DDM - Tools for Radiologists, Pathologists, Labs
ZebraMD - diagnostic tool, care recommendations
ISABEL Healthcare - diagnostic platform
If you still have questions, please reach out to us.