The Illinois Rare Disease Alliance is a nonprofit organization led by patients and caregivers. We unite patients, families, advocates, researchers, and healthcare professionals to improve the lives of the 1.2 million Illinoisans living with a rare disease. Together, we are a powerful, unified voice for the rare disease community across our state.
United to improve the lives of the 1.2 million Illinoisans
Living with RARE Diseases
President
Vice President
Treasurer
Secretary
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