The Illinois Rare Disease Alliance is a nonprofit organization led by patients and caregivers. We unite patients, families, advocates, researchers, and healthcare professionals to improve the lives of the 1.2 million Illinoisans living with a rare disease. Together, we are a powerful, unified voice for the rare disease community across our state.
United to improve the lives of
the 1.2 million Illinoisans
Living with RARE Diseases
President
Vice President
Treasurer
Secretary
Chicagoland patient support group for people with connective tissue disorders at www.edschicago.org
Show your support for people living with a rare disease.
Awareness organization for primary biliary colangitis at www.pbsawareness.org
Show your support for people living with a rare disease.