The Rare Disease Alliance posts the calendar of the Illinois General Assembly (House of Representatives calendar, Senate calendar), rare disease conferences, and the meetings of the Illinois Rare Disease Alliance board.
Join us to celebrate Rare Disease Day at the Capitol in Springfield, Illinois on
Tuesday 24 March 2026 at 5:00 pm - 7:30 pm
📍 Bloom Wine Bar, Springfield
An evening reception honoring leaders and advocates who have made outstanding contributions to the rare disease community. This special event fosters meaningful connections among patients, caregivers, healthcare professionals, and industry partners in an informal setting.
Wednesday 25 March 2026 at 9:00 am to 11 am
for Rare Disease Day Symposium
📍 President Abraham Lincoln Springfield, a DoubleTree by Hilton
A focused morning program featuring patient perspectives, policy discussions, and industry insights—followed by coordinated visits to the Illinois State Capitol.
Registration is free and facilitated by iBio.
Apply to be a presenter.
Reserve a rotanda table at the Capitol for your organization for 25 March 2026: Contact the Division of Special Events by telephone at (217) 441-1672 or via email at dbrackettjr@ilsos.gov
We recommend making your reservation at the Abraham Lincoln Hotel where iBio has secured a room block for Rare Disease Day. You can also call in reservations by calling 217-544-8800 x1 and asking for the “iBio Rare Disease Day” or reference code “IRD.”
A more affordable option is the Hampton Inn, 2300 Chuckwagon Dr, Springfield, IL 62711 phone: 217-793-7670
If you would like your event listed on our calendar please let us know.